Showing posts with label als. Show all posts
Showing posts with label als. Show all posts

Monday, January 2, 2012

If Heaven And Hell Decide

I think one of the hopes many of us have is that this year will be "better" than last. We'll make more money, we'll get healthier, we'll go to the gym, we'll be all around better people. My wife is on the phone as I write this and just said to a friend, "what I know is 2012 will not be better than 2011".

For her and the inevitable physical toll her disease will continue to take there is no clean slate. Just a certainty that the downward spiral will continue. But as I listen to her voice, she's so connected to this person on the phone. She's really living the life she has. And that's inspiration enough to me that maybe my life will be richer if I muster the courage to be there to help her.

Last week I had lunch with a domme friend who suggested I read a series from the New York Times Magazine about regular people who died this year. I recommend it too. My wife and I read the series together this morning. She cried so much at the first couple that she couldn't make it through the series. Each highlighted how death can strangely provide hope. We all face it. Our own and the death of those we love. As the article suggested, death is the most democratic of experiences.

So my hope is that I can be there and go the distance. Since I hope it will be a long haul, I have to figure out how to take care of myself as well as take care of her. Shrink has a care giver group for me. So far I'm not moving back in with my wife entirely; so I have my bachelor digs in the West Village. And I've got friends.

So in the midst of the reality that for my wife 2012 will not be a "better" year - for me - it may be awful enrichment.

Friday, December 23, 2011

Do I Have A Home For Christmas?

I'm up early. Back on the Upper West Side. Sitting on the sofa with my dog in my wife's apartment. Her new go-cart wheelchair dominates the living room. It is an otherwise beautiful place. Stunning views of the Hudson and the majestic sweep of West End Avenue reaching north. I left the West Village last night to come up here. I've grown to like it here even though I dislike the Donald Trump, well-heeled, housing project feel of the neighborhood.

I'll spend Christmas here. It feels like home. I think. The alternative of being single and alone for Christmas looms and I try not to think about how I'd spend the holiday when my wife is gone. Maybe it would be like how I don't miss the living on Riverside Drive; but somehow I don't think so. I just don't think about it and try to live here and now.

It's a good way to try to be. I had a good year. A solid foothold in Miami, better business in New York, and being present even when it's hard. So I'll help my wife learn how to drive her Rolls Royce wheelchair. Can't say as I'm happy that Santa brought this contraption into our lives, but it is there. I rolled the rug up last night so its tight little turning radius wouldn't tangle it in the squat wheels.

I guess I do have a home for Christmas.